Eight Year Review

When I started this blog a bit over eight years ago, I was writing about my illness and the nutrition supplement approach to healing the illness. At the time I thought the reason the pharmaceutical industry was sabotaging those who support the nutritional approach was because supplements were a cheap approach from which they could not make money. Now I suspect that the treating of mental illness with supplements is actually a good deal more expensive than using prescription drugs in terms of the actual cost of making the medicines. My experience with psychotropic medicines and nutritional supplements makes me favor the nutritional approach rather than using medicine to shut down the mind.

My treatment now is a small amount of anti-psychotic and anti-depressant: a gluten, casein, and egg free diet; and prescribed supplements. I am doing better, especially if I stick to the diet, but still have some problem with the noise in my head – particularly if I eat food with casein. I have pretty much succeeded at eliminating gluten from my diet. If you want to try the nutritional approach, I advise that you work with a health care professional who has experience with the approach and knows what he or she is doing.



comments on forced medicating for us with a serious mental illness

I am one of the persons in this country with a serious mental illness.  Rich Lowry, in his January 19th op-ed, quotes E. Fuller Torrey as writing there are 4 million of us, out of whom 1600 commit murders each year. The 1600 seemed high to me (a rate of 40 per 100,000 compared to around 4 or 5 per 100,000 for the general population).  I checked Torrey out at Wikipedia.  The Wikipedia article says Torrey counted the number of murders by those with bipolar or schizophrenic illness in a city of 4 million and extrapolated to the total US population. According to Wikipedia, the estimate came out to 1000 murders per year. Perhaps Lowry was quoting the upper limit of a confidence interval. Using National Institute of Mental Health numbers, there are 5.7 million people with bipolar illness and 2.4 million people with schizophrenia in this country.  Using the National Institute of Mental Health numbers and the Census Bureau estimate of the US population at about 307 million persons, about 2.62% percent of the US population have schizophrenia or bipolar illness.  Dividing Torrey’s estimate of 1000 murders per year by 8.1 million persons gives a rate of 12.3 murders per 100,000 for persons with bipolar or schizophrenic illness.  Dividing 1000 by 307,000,000, the size of the US population, and multiplying by 4,000,000, the size of the population where the murders occurred, we get 13.  So, Lowry observed 13 murders out of 4,000,000 people. A 95% confidence interval for the number of murders committed in the US by bipolar or schizophrenic persons, if we were to assume the 13 observations were from a random sample of size 4,000,000 from the entire US population,  would be (13 / 4,000,000 * 307,000,000) plus and minus 1.96 times 307,000,000 times the square root of ((13 / 4,000,000 * 3,999,987 / 4,000,000) / 4,000,000).  We could be 95% confident that the actual number for the US is between 462 and 1538 murders if the 4,000,000 were a random sample from the US population.  The 95% confidence interval for the rates would be between 5.7 murders per 100,000 and 19.0 murders per 100,000.

As a statistician, the extrapolation makes me cringe.  If I were doing the estimation, I would at least control on the overall numbers of murders in the city compared to the US total number of murders by doing a ratio estimate.

For the city of Fort Dodge, Iowa, in whose newspaper I read Lowry’s op-ed, if Torrey were correct and Torrey’s count for the city of 4 million extrapolates to the whole country, we could use the above numbers, an estimate of the population of Fort Dodge at 25,075 persons, and Torrey’s figures, to get an expectation of .0262 * 25075 * 12.3 / 100000 = .081 murders per year by persons with schizophrenia or bipolar illnesses, or .81 murders in 10 years, in Fort Dodge.   There were 6 murders in Fort Dodge over the ten years from 1999 to 2008.  I do not know if any of the murderers had schizophrenic or bipolar illnesses.

Dr. Torrey, who is a psychiatrist, advocates for better treatment of the seriously mentally ill, but, also, for forcing the mentally ill to take medication.  Certainly, our country’s treatment of the seriously mentally ill is beyond the pale. I believe the reason for the neglect of the mentally ill has to do with the trend toward cutting taxes and government services.  Writing laws about forcing the mentally ill to take medication would not solve the problems we mentally ill have.

I have had an illness in the spectrum of the schizophrenic illnesses for at least 34 years.  My doctors have tried me on 7 different anti-psychotics, lithium, two anti-depressants, and one anti-anxiety medication.  According to Dr. Abram Hoffer, another psychiatrist who has spent his life researching schizophrenia, the anti-psychotic medications lose their effectiveness over time.  Hoffer writes that persons with schizophrenia on anti-psychotics recover about 10% of the time (versus 90% of the time in poorer countries where anti-psychotics are not used).  My experience on anti-psychotics follows Dr. Hoffer’s observations.  I did quite well at first, but, even though I stayed on medication most of the time, I got progressively sicker (to the point of almost constant psychosis).  The reason we try to go off anti-psychotics is that the drugs are horrors.  My experience has been that the drugs cause a deadening of the feeling tone, difficulty with getting out of bed in the morning (I have spent many days not getting up till late afternoon), problems with short term memory, difficulty using the mind, to name a few side effects.  I have tried to go off my medication five times over the last 34 years.  In 2007, I began using nutritional supplements to try to heal myself.  When I started the nutritional approach, I was not working with a doctor who had experience with nutritional approaches and eventually ran into trouble.  Just this last fall, I began working with a clinic that treats mental illness with supplements and diet. I am on a lower dose of anti-psychotics now and have little trouble getting out of bed in the morning and my mental processes are much better.  If I had been forced to take medication, I would not have been able to try the nutritional approach, because the mainstream psychiatric establishment does not believe such approaches are effective.  Believe me, I cherish my right to control my medications.

Dr. Hoffer found that about two-thirds of his patients had food sensitivities causing their illnesses (on page 90 of Healing Schizophrenia, Dr. Hoffer sites that researchers have found at least 50% of those with schizophrenia have cerebral allergies to foods) while most of the rest followed a genotype and had an genetic illness called pyroluria.  Just about all can be treated and recover.  So, I suspect the solution to the types of murders that the psychotic commit is the proper treatment of the illness, using prescribed nutritional supplements and diet  (and psychotropic drugs as needed) under the care of a doctor who has been trained in the use of nutrition and diet to treat mental illness.  Such doctors do exist and my experience with the treatment is encouraging.  The fact that  people suffer with the terrible pain of schizophrenia and, a few of them, do horrible murders, when an effective treatment is out there, is beyond the pale.

Note, Dr. Torrey’s result was for bipolar and schizophrenic persons.  Even if Dr. Torrey’s number were correct, the rate for schizophrenics, who, I believe, are those who commit the crazy murders, like those that happened in Arizona, may be much lower.  I have read that schizophrenics, while disruptive and sometime violent, commit murder at a lower rate than the general population.

truehope no hype

This blog is in response to the blog posted at

http://intentions.wordpress.com/2009/07/16/truehope-or-truehype-an-analysis-of-empower/ .

I do take the Truehope supplement EMPowerplus and I do have a PhD.  I thought I would counter some of Jane’s arguments.

First, according to my reading of Adele Davis’s books (Adele Davis was a dietitian who was writing in the 50’s and 60’s.), the B vitamins must be in balance for the body to function well.  There are several B vitamins and the B vitamins are water soluble.  If I remember what I read correctly, one can get an unbalance of the B vitamins by taking too much of one or more of the B vitamins and too little of others  So, if one can get an unbalance of the B vitamins by taking too much of any of them, the idea that one can get the correct balance of B vitamins just by taking any old multivitamin in false.  One has to be careful about the balance of B vitamins that one takes in.  Adele Davis wrote that some of the B vitamins are very expensive and are not put into the over the counter multivitamins at the level that is necessary for health.

Adele Davis was concerned that we modern people do not eat as much as our predecessors, because we do not do as much manual labor, so we do not need as much food and, as a result, we do not get as much of the micro nutrients from our food as our predecessors.  She was also concerned that micro nutrients were being processed out of our food by the food industry, out of a desire of the industry to give us cheap food that does not spoil.

Second, a quite high percentage of those who develop mental illness recover spontaneously.  So, even though Jane believes she was able to recover using meditation, she may be one of those who would have recovered spontaneously, anyway.

Third, Truehope tried to do a double blind study of the effectiveness of EMPowerplus in treating the Bipolar disorder, but the restrictions on who could be included were so strict that the researchers could not get enough subjects to do the study.  I am a statistician, so I know a little about the design of experiments, and I wonder who designed the experiment.  In order to be included in the study, a subject had to have a diagnosis of bipolar disorder, could not be on any medications, could not be a user of alcohol or drugs, and, I believe, over 17 years old.  Where would you find such a person in this day of psychotropic medications?

Fourth, Jane questions how two hog farmers in Canada could know enough to find the correct balance of vitamins to treat mental illness.  I do too.  The question one might ask is why would researchers who worked with vitamins and developed a supplement that cured mental illness, at least for some people, make up such a story.

My guess is that research was done, and the story was made up to get the supplement out to the public.  With so many claims being made for so many health products out there, the public is skeptical.  The good story was able to get many people to try the supplement.

Also, there is much less money to be made in vitamins than in patentable pharmaceuticals, so the big pharmaceutical companies are not really interested in researching vitamin cures.  I appreciate what the research of pharmaceutical companies has done for me.  I am not languishing on a back ward of a mental hospital (my last diagnosis was paranoid schizophrenia).  Instead,  I have been able to continue on with my life, because of the help of the psychotropic medications that the pharmaceutical companies have developed.  But, there are huge amounts of monies tied up in the development and sale of psychotropic medicines these days.

Jane writes about hope.  I am a Recovery International (http://www.lowselfhelpsystems.org) leader.  I know the power of the mind and hope.  I, also, know that, even with 29 years of experience practicing Recovery (which I recommend to anyone with emotional or mental illness), I was not able to manage my illness without medication.  I had my original psychotic breakdown in 1977, so I have had problems quite awhile.

My illness progressed over the years and, in 2006, I had a bad experience on one of the medicines my doctor tried me on.  I felt very helpless and quite hopeless.

In May of 2007, I began taking the EMPowerplus supplement.  Like many others with the diagnosis of schizophrenia, I have been dealing with psychosis as my medications have been lowered (and, I might say, “like I wasn’t before?”), which I am doing under the care of my doctor.  But, unlike under the influence of the anti-psychotic medications, I have energy, my memory is better, my mood is better, I can get up in the morning, sometimes I can feel emotionally and sensually like I have not been able to in years, I am comfortable in social situations (which I have never been) and I am enjoying life quite a bit (I haven’t enjoyed life since I was a small child).  I also feel like I am finally working through my paranoia and psychosis rather than trying to medicate the stuff in my mind away, and that I will get the craziness under control.

Managing my illness with vitamins and minerals is different from managing the illness using anti-psychotics and other anti medicines, but I would not go back and I hope for a full recovery.